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Progress report
Xian, Rachel and I went to the pools at the Legislature a few days ago -- as you can see, Xian's now attempting her old 'cheesy' smile. You can see, too, one of her symptoms---the clenched hands....
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Xian the media princess
Xian and I went to the Lyme rally here and Suh Ling Goh, one of the local media who covers health for Global asked me to do an interview (ack!). It went pretty well....wonder if we'll be getting any...
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This week....
Xian's continued to have some reactions from about the 2nd day of the new medication (Mepron, for the babesia). Very similar to the couple of days she reacted to the zithromax---lots of little crying...
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Getting the 'zombie' out
I've been participating in a Canadian Lyme chat group where there's a group of parents who've had kids recover from Lyme and one of them commented that it was like watching the zombie leave her child....
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The princess begins to wake up
In most fairy tales, the princess suffering from a bad spell caused by a poisoned apple or a pricked thumb wakes up suddenly after the kiss by the prince. (Though around here, we're partial to the Dora...
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Some Interesting Developments
It's been a busy couple of days. We've heard from Xian's Lyme doctor in Seattle, who sounds pleased with how things are going--and based on the rash suspects we'll need to add a medication, but she...
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The Roller Coaster
We've had a few ups and downs since the last post. Grandma and Grandpa were here for a visit--saw Xian's improvements and we managed to go out for a few meals, go out into stores and do some things...
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Two steps forward, One step back
That's one of the descriptions I've heard used for what happens during Lyme treatment and it does seem to be true for Xian. We're easing out of her bad die off period---the worst of it was for about...
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Back....
Just a quick 'fly by' post. We're back after 10 days in BC and a visit to the Lyme specialist and also recovering from a couple of pretty bad weeks. Xian had a particularly bad bacterial 'die off'...
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Off to School
Xian's had a very busy week, especially compared to hanging around home with me. She started kindergarten and also is now starting to attend daycare. All things considering, it's going pretty well and...
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Little by Little...
Is how Rachel talks about Xian getting better. However, since she started the antibiotic to hit the Bartonella, she's made a few 'bigger' improvements. Last week sometime her short term memory started...
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"Before" and Three months of Treatment
Here are two pictures: one is a picture of Xian at the height of her illness -- she has what I've been told is a pretty classic neuro Lyme "blankness". The picture in the car was taken in September and...
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A long overdue update
Xian’s continuing to make progress and lose symptoms. She still has her ‘bad days’ every month, but they are more and more predictable, usually hitting about a week every month unless there are new...
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Long overdue....
It’s been a while since our last update. Life has been pretty busy with work—a little too much, too soon in terms of Xian’s needs. Her time on the Amoxicillin hasn’t been too much fun (she had her...
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Mamma Mia, Happy Holidays!
We've had a busy couple of days -- and fortunately for us, Xian's been having a good period with very few symptoms and a bit of appetite improvement. Considering we've had lots of social events (which...
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An update....
Life has been incredibly hectic for us since the beginning of January. Between my teaching schedule (which involves both an evening class and an early morning one---not so good for keeping to a sleep...
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Trying to get public awareness...
I'm not really sure how many people are following Xian's blog at this point, but thought that it wouldn't hurt to post something here. Anyone who knows our story is aware of the devastation that Lyme...
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Referral, maybe?
Thought I'd update. After playing telephone tag with the nurse in the pediatrician's office I managed to have a couple of conversations with her yesterday. While we can't get an appointment sooner...
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Lyme in the Media
Lyme has been in the news lately -- though unfortunately due to tragic reasons, a case where there was a shooting and the shooter is reported to have neurological...
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Some good press
Someone on CanLyme posted this newscast on Lyme -- wish that there was more publicity like this, and maybe kids like Xian would get diagnosed and treated...
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Update for April
Things have been busy for me with end of term – the usual avalanche of assignments and grading to complete. There have been a few developments in terms of our ongoing treatment battles. The Toronto...
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Almost a year....
Since Xian began treatment. And now two years since Xian was likely bitten by her tick. Even with having lived through our journey, sometimes the past two years seems simply unbelievable. The part that...
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Summer Update
Just a quick update. Xian's continuing to do well on her current medications, although her last blood work showed that she had a low neutrophil count. This is a sign of battling an infection and not...
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Breaking news!!!
I'm swamped in midterm grading, so no time for more than a quick post (except to say that Xian continues to do well and we're hoping to take a break or stop antibiotics permanently in December if all...
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In the news
I know, it's been too long since my last post... We're now finished with antibiotics (at least for now) as of the end of December, and things are still stable. Xian's story has received some media...
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